~ James had a stroke during the first trimester.
~ James had no suck/swallow reflexe; he has a g-tube to eat.
~ James has Factor V Leiden, which is a blood clotting disorder.
~ James' optic nerve in his left eye never fully developed, and he is extremely far-sighted.
~ James has a chromosome disorder, 22q11.2 duplication, which is an extra copy of a small
piece of chromosome 22.
~ James has servere reflux, and had Fundoplication surgery to prevent the severe reflux.
Since his NICU stay as an infant, James has been:
~ Diagnosed with a catastrophic form of Epilepsy, Infantile Spasms.
~ Given 10 differnt anti-seizure meds; none of which has worked so far.
~ Diagnosed with Quad Cerebral Palsy, which means all four limbs are affected.
James cannot hold his head up, sit, stand, walk or eat by mouth. He is always hooked up to a monitor to show his O2 levels and his heart rate. His brain is consistently seizing. Because of this, he needs frequent suctioning.
James will always need someone with him 24/7, however he does not qualify for nursing assistance. We are dedicated to helping spread the word about a fundraising event to help James' family get a handicap accessible van.
Let's get James rollin'! Let's help his family purchase a wheel chair accessible van! By participating in this event, we can make that possible! Join in the fun by buying your entrance tickets, bullet tickets and GRAND raffles! There will be a delicious meal offered while you peruse the awesome silent auction baskets and other activities! Check out the website, www.RollingForJames.com for more information on this event and other ways you can help.
Let's get James a van!
